Mayo

Got home at 1:30 am from the airport. 

Got up at 5:30 am.

Drove 3 hours to the Mayo Clinic. 

So far it’s been a mixed review. We both really wanted a miracle. Not today 

After a handful of appointments through out the day I think we left feeling like there is good information to be had.

1. EDS ✔️
 2. Also know as hyper mobility spectrum disorder

3. No cure, no meds, pain meds not that helpful.

4. Lifestyle adjustments are the most helpful.

5. They are offering her a lot of classes and therapies.

Biggest take away, in 10 years of living with this we’re on the right track and it’s expensive and never ending. 

Things that help Grace: Lincoln, going to the gym, therapy, going to the gym., heat, rest, 

She’s going to try to add to that arsenal to get some more good tools.

We were hoping for a unicorn…but there isn’t one.

When we finished we went to the beach for a romp. Had some dinner. Went to the hotel and we literally lay down on the bed, me to study & her to talk to Blake, and were sound asleep by 7:30.

Back to Mayo today.

Dani has Covid